Okay, It has been awhile since my last update. I haved become a pro with handling my PICC line, which is a good thing. And I'm sorry for the delay in posting an update but have not had a very solid living situation recently. I was living with my grandparents for 3 months and they were ready for my to leave so I moved in with my sister which I was so excited about, but she wanted me to move on after a month (she has 2 kids and Lyme disease herself) so now I am at my mother-in-laws but only for the next week or two. She works full time and can't take on the task as a caregiver. I find myself very sad and confused. I am living out of my suitcase these days, and I feel so alone. The one thing I do have going for me are strangers that appear out of the nothingness and some have become my good friends and soulmates along this journey. It is so amazing that strangers can love and help so much. I guess I am kind of amazed at that part, especially my mother-in-law has been so amazing to me. She is one of my Angels but I do know that with her working it would be so hard because I have days where I cannot get out of bed on treatment. I still give thanks to those who have taken me in and helped, I couldn't be here where I am today without you, so thanks. I get kind of judgemental sometimes, so if I have, I apologize. I am working on letting go of worrying about where I will end up next and just let what ever happens happen, and trust the process. I have been getting offers from strangers to take me in, which is amazing, but I have to follow my heart to my healing place, and I haven't found it yet. I am sure God will provide the right place just in time, if I have the Faith.
On a good note, I went to see my doctor. It was such a great trip, I was off treatment and actually felt some better days. I went and met up with my new best friend forever, Courtney. She is also a lyme patient of Dr. Jemsek's and she is close to my age and and we have the best laughs and the best cries together. :) And my good friend Wendy who lives in Myrtle Beach drove 3 hours to come visit me. It was such a good feeling to be around people who just wanted to hang out with me and I felt almost as if I was near my mother again. Just that cool comfortable, everything's going to be alright feeling. Oh gosh, now I am crying. I officially have crying wrinkles. I think botox might be in the future. Not! LOL.
Dr. Jemsek said things are going good. He said he can tell that I am better than I was before and that treatment is going really good. My liver counts and blood work are great and that is good because some people can't handle the treatment. I feel so blessed and feel that I am on the yellow brick road to wellness. I still am dealing with having more bad days than good but have had a couple of good days that made me feel some hope. Yay!! Oh, and also my friend Courtney and I had our appts. back to back so that was fun. Who would of thought a doctors appt. would be fun.
Last month I had an anonymous donation of $1500 and that paid for what I needed, just in the knick of time. I am now totally out of money now and praying that it keeps coming in so I can continue my journey to wellness. I( have the faith. So, please keep me in your prayers and if there is anything you can do to help, even if it is a dollar, it helps. Thankyou so much to everyone who has been helping me along the way. You are truly my Angels.
XOXO Jamie
April Update
Written by Jamie
Wednesday, 29 April 2009 05:17
Finally having some energy tonight and wanted to post an update. It is the end of April and have been staying on course with treatment. It has been pretty hard this last month. I have some symptoms that I did not have before and don't like that but my doctor reassures me this is due to the dieoff of the bugs, called neurotoxins. I sure hope so because I am working my butt off. :) One of those symptoms which I now know what people were talking about, is nerve pain. So not cool. It feels as if my nerves in my body are actually exposed on the outside of my body. But taking my meds to control it. I have only been on IV treatment for 5 weeks so far, 9 more months to go, so just have to keep my faith in God that I will keep moving towards the light. I am now staying with my sister which is a nice change. Just like old times, fighting over the little things. One part of my life that has improved dramatically is being out of my old home enviroment. Just getting out of that enviroment has opened up my eyes to what I have been missing out on. Really great and loving people! My heart feels like it is mending. Such a good feeling. I feel like I am on the homestretch now. I have a great team of people who are supporting me and loving me. As I lay here getting ready to dose up again tomorrow and feel crappy, I can honestly say I am happy. I never thought I would feel that again and here it is.
I got to see my son last week and it was so great. I hadn't seen him in 6 weeks and that was hard. We both cried when we saw eachother. He is going to be 4 years old in 3 weeks. We just layed here in bed and watched lots of cartoons and he talked about how my doctor was going to get me better. :) When he had to leave he was so sad, he was crying and it just broke my heart but I have to keep on working on getting better for myself and for him.
Okay, time for bed. Thankyou for supporting me and your prayers. They are working. :)
April 9, 2009
Written by Jamie
Wednesday, 08 April 2009 18:13
Wow, It has been awhile since I have posted a note. Since my last blog, I flew out to see my doctor, got my picc line placed, and have been on IV treatment for the last 3 weeks. My trip was long and grueling but once I got there it was really good. I had my first infusion of Rocephin and attended the Into the Light Gala and movie premiere of Under Our Skin. I was really sick but made it in a wheelchair. I was so happy that I made it because I met Mandy and Jordan from the movie Under Our Skin. Also, met Andy Abrahams the producer of the movie. So many people came up to me and told me there stories of how Dr. Jemsek (my doctor) had saved their lives. It was amazing and gave me so much hope. The place was filled with so much love and hope. After I left there, I really felt like, and knew deep down inside that I was seeing the best doctor there is for Lyme.
Since then I have been on my treatment and have had some really hard days but remain committed. I am not giving up. I will die trying if that is what it takes. I am done living my days wanting to die and feeling trapped inside my body. It has been very hard to be away from my son, but I now know in my heart that I made the best choice for me and for him. I stiill get to visit with him every month and everytime we see eachother we both cry tears of joy. He is going to be 4 years old next month.
As for my husband and some family members they still choose to think I am making up my illness and I have finally decided there is nothing I can do to prove myself to them, not even with 10 positive CDC tests do I think would they believe me. Or that I had a picc line placed in my heart and laid around in bed, while my car was repossesed 2 weeks ago; a car that I worked so hard to have. So, time to keep going with my heart and God, which have not proven me wrong so far. :) I am so excited to get better so I can help others in my situation.
I really truly believe that Dr. Jemsek is the best doctor there is. He just knows what it takes; a loving family and friend support team, whichmeds to combine, and when, which drugs to control your symptoms during treatment, and what to do to support the immune system. If anyone would like more info about my doctor I would love to share what I can. My e-mail is
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
.
As for any improvements for me, I have had some moments of clarity, less brain fog, going from taking 6 advil a day for my headaches down to 1 every other day. To me, in 3 weeks that is pretty darn good. :)
And again, thankyou so much for your thoughts and prayers and donations. Can't wait to keep updating on my recovery.
A Healing Team
Written by Jamie
Monday, 26 January 2009 21:25
I just wanted to say thankyou to everyone who has contributed to my healing journey. Not only for your contributions but also for your thoughts, prayers, love, and friendship. I feel so blessed and overwhelmed.
My illness has been so devastating to me and my family members but I finally have learned to accept what is and I truly know that I got sick so that I could not only learn who I was but learn to heal not only my physical body but to heal my whole being.
I choose to believe my illness has been one of the greatest gifts I have ever received because I have learned to have compassion, empathy, courage, faith, hope, and love in my heart. I have made friends for life and have met such wonderful and caring people that I would have not known before.
So, to my healing team, thank you from the bottom of my heart for helping me, and I pray for your lives to be blessed and filled with love and joy.
Quick Update
Written by Administrator
Friday, 23 January 2009 00:16
I just wanted to update everyone since there has been a lot of donations and an outpouring of concern for Jamie since her last post, but she is not up for writing an update these past days. First, I want to thank everyone of you for your donations, prayers and good energy. Just knowing that there is so much care and love out there for her is making a huge difference in Jamie's attitude and has given her much hope. She continues to stabilize at her grandparents and is able to afford the several neuro related meds and one oral antibiotic that has been prescribed for her. Her MD is top notch when it comes to Lyme so she is in great hands.
Although we did not know where Jamie would be able to stay for her IV antibiotic treatment (her grandparents are too old for that whole ordeal), we all were praying God would give an answer. God has answered but I will let Jamie tell you all about that, a not so small miracle in itself. At any rate, many thanks to all of you for stepping up, reaching out and helping. It is so good to be part of this and I feel blessed to have just helped in the small way I have. May God shine her blessings on all of you.
The Beginning
Written by Jamie
Wednesday, 07 January 2009 02:27
Okay, let me first introduce myself. My name is Jamie and I am suffering from late stage neurological lyme disease. I am married to my husband Kurt and have my little 3 year old Kaden which is the love of my life. I am starting my healing journey today. No more waiting, I have hit rock bottom and now I am going to reclaim my life......
Okay, this is my very first blog entry. It may not be to great because I am feeling pretty weak. I started to have a seizure last night. I was so scared but took my meds and it calmed down. I am having neuro symptoms so bad. I couldn't cut my chicken with a knife last night, my grandma had to do it. I started weeping. It is so scary when you lose control of your body. I have just moved into my Grandparents house as of 2 days ago. They are both 80 and the most caring and happy people. I feel like I am in good hands. It is just so hard being away from my son but I just keep reminding myself I am doing this for him. I came to see that I was never going to get better living where I was. My Lyme doctor told me that I needed to move into a stable environment before he would start treating me, so I really didn't have a choice. I am only 3 hours away so I will still be able to see my son on weekends. Thank God! I don't think I could do this without seeing him. He is my best medicine. He just fills my heart up.
I have had to come live here with my grandparents for a number of reasons, my mother and father both passed away this last year, we lost everything financially, and I was unable to care for my son. I just know that I have gone downhill really fast and when the seizures started this last month I knew I could not avoid treating this anymore. I need to raise $25,000 to get my treatment. I am also forever grateful for my friend Craig. I feel God sent him to me just in the knick of time. He founded this website for me and has just been a great friend to me. He has shown me to let go of my fears and to trust in God and to Trust the Process. I feel so blessed. I know the treatment will be hard but I am a fighter. I just want to be the best Mommy ever. So, for the first time ever I am going to take care of me and follow love. Love is God, God is love.....
What this is all about
Written by Administrator
Tuesday, 12 August 2008 10:00
The Jamie's Miracle Project is now online. Here you will learn about Jamie and her journey as she overcome's Chronic Lyme Disease. Many of us who have gotten to know Jamie have realized the determination within this young woman, the magnitude of her struggle, and the circumstances that are currently holding her back from regaining her health and taking care of her 3 year old son. We decided that if we all got together we could help.
Okay, It has been awhile since my last update. I haved become a pro with handling my PICC line, which is a good thing. And I'm sorry for the delay in posting an update but have not had a very solid living situation recently. I was living with my grandparents for 3 months and they were ready for my to leave so I moved in with my sister which I was so excited about, but she wanted me to move on after a month (she has 2 kids and Lyme disease herself) so now I am at my mother-in-laws but only for the next week or two. She works full time and can't take on the task as a caregiver. I find myself very sad and confused. I am living out of my suitcase these days, and I feel so alone. The one thing I do have going for me are strangers that appear out of the nothingness and some have become my good friends and soulmates along this journey. It is so amazing that strangers can love and help so much. I guess I am kind of amazed at that part, especially my mother-in-law has been so amazing to me. She is one of my Angels but I do know that with her working it would be so hard because I have days where I cannot get out of bed on treatment. I still give thanks to those who have taken me in and helped, I couldn't be here where I am today without you, so thanks. I get kind of judgemental sometimes, so if I have, I apologize. I am working on letting go of worrying about where I will end up next and just let what ever happens happen, and trust the process. I have been getting offers from strangers to take me in, which is amazing, but I have to follow my heart to my healing place, and I haven't found it yet. I am sure God will provide the right place just in time, if I have the Faith. 
On a good note, I went to see my doctor. It was such a great trip, I was off treatment and actually felt some better days. I went and met up with my new best friend forever, Courtney. She is also a lyme patient of Dr. Jemsek's and she is close to my age and and we have the best laughs and the best cries together. :) And my good friend Wendy who lives in Myrtle Beach drove 3 hours to come visit me. It was such a good feeling to be around people who just wanted to hang out with me and I felt almost as if I was near my mother again. Just that cool comfortable, everything's going to be alright feeling. Oh gosh, now I am crying. I officially have crying wrinkles. I think botox might be in the future. Not! LOL.